Sam has shown me that happiness is contagious, that working hard isn't optional, that time not money is the greatest gift you can give someone. With Sam's upcoming surgery I wanted to make sure his birthday and Christmas were special. I asked him what he wanted to eat at his birthday and he told me "Pizza, bertday cake, ice cream and soda." I negotiated the soda to green tea or kombucha and we were good to go. I knew having a lot of people over would not be in Sam's best interest since he struggles with following conversations unless they are one on one and often in a group situation he will wander off to be away from the group and with his pain issues more prevalent his behavior can change in a moment. I decided a family party with the grandparents would be the best choice. After cleaning the house, picking up a gluten free pizza and cupcakes, goat milk, coconut ice cream and candles I was ready to enjoy the day with Sam.
Unfortunately Sam's hip had other plans and his pain levels escalated at different intervals throughout the day. The Ultram which was keeping the pain in check seemed to be failing today. I prayed that he would be comfortable enough to make it through dinner and opening his gifts.
When Sam was younger he never liked gifts, didn't have any interest in opening them and would rarely open more than one at any event or holiday. It sometimes took us a couple of weeks to get Sam's Christmas presents opened. Times have changed and I found Sam often peeking at his presents or shaking them this week...much more typical behavior. Sam loved his gluten free pizza and due to his hip pain I allowed him to lay on the floor to eat it. It was evident the changes in Sam's behavior that are caused by pain and pain medication, repetition, lack of focus, persistently calling for me, yelling if we tried to talk as a group, position changes, higher and quicker frustration levels, generally louder and overall more demanding. My heart hurt as I watched Sam struggle to hold it together and enjoy his birthday party. When it came time to open the gifts he opened them quickly with little regard to the actual gift but instead wanting to get to the next one...maybe just wanting to be done with it. He wanted things set up and working in such a short time span that all the rushing in the world would not have satisfied him.
By the time we were ready to have cake Sam was ready to call it a day. Singing Happy Birthday has always been one of Sam's favorite things to do but today as I called him to the table he went into a major melt down. He cried, yelled, hit the floor and made sure that everyone knew he wasn't happy. Knowing how I feel and react to pain...I knew immediately that Sam's pain was breaking through again. He finally made his way to the table, half crawling and half walking and I was so happy to see his face light up as we began to sing. It always makes my heart smile to see Sam sing "Happy Birthday"...his expression is one of poor joy. Sam gobbled down his cake and ice cream and then returned to the living room to lay back down on the floor.
As I write this Sam is asleep but he continues to re-position himself and with every movement and groan my heart hurts a little more. I rubbed in his hip as he slept and then tried a little cranial sacral work to see if I could get the left side to release a little. He woke up briefly, smiled his wonderful little crooked smile and said "I wuv you Mommy, my heart" and I replied "I love you birthday boy with all my heart, forever and ever" and again Sam said "Amen" as he drifted back to sleep. I watched him sleep, closed my eyes and thanked God while praying for healing of Sam's hip. This little boy has the ability to grasp my heart with his smile, my eyes never tire of looking at his intricate features and memorizing how his eyes light up as he talks and how they sparkle in ways different than my other children. Good night my little warrior and thank you for blessing each and every day of our life together...you are amazing!!
I snapped a few pictures of Sam and Buddy earlier in the day and thought you would enjoy them.